Multimedia Advice for Fighter Moms
Welcome to Fighter Mom Multimedia. We update this page frequently with new audio, video, and images, so please check back often!
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Fighter Mom Friday Multimedia
Fighter Mom Friday Photos
Below is a slideshow montage of photos taken during the May 9, 2008 Fighter Mom Friday event in New York City. The day-long workshop was sponsored by Fight SMA and the Toy Industry Foundation, and was designed to educate and inform attendees who are fighting against a disease affecting their children. These photographs are courtesy of Lisa Berg Photography.
Click on the little speaker symbol next to the "pause" symbol to hear music.
Fighter Mom Friday Audio
Below are episodes of Fighting Back Podcast (more information on the podcast can be found by scrolling down this page) featuring audio recorded during Fighter Mom Friday. Each show includes an entire seminar from one of the many presenters during the workshop. We've also included supplementary materials that accompanied those presentations.
Fighting Back Podcast #14: Nancy Jeffrey
People Magazine Senior Editor and "Heroes" Section Editor Nancy Jeffrey discusses her magazine's coverage of individuals and families fighting diseases. She also gives tips on media relations strategies. Click the player below to listen or use the link above to download the show in mp3 format. Also linked below is the Powerpoint presentation shown by Ms. Jeffrey during her seminar.
Download Powerpoint presentation
Fighting Back Podcast #15: Louise Raymond
McGraw-Hill Companies Senior Director of Global Corporate Responsibility discusses corporate giving and how Fighter Moms can not only approach her company for grants and donations, but how to approach other companies as well. Click the player below to listen or use the link above to download the show in mp3 format. Also linked below is the Powerpoint presentation shown by Ms. Raymond during her seminar.
Download Powerpoint presentation
Fighting Back Podcast #16: Dr. Alex MacKenzie
Dr. Alex MacKenzie, Director of the Children's Hospital of Eastern Ontario Research Institute discusses the relationship between families and researchers, and how they can help each other. Click the player below to listen or use the link above to download the show in mp3 format.
Fighting Back Podcast #17: Steve Eichenauer
Steve Eichenauer, partner at lobbying firm Public Strategies Washington, discusses how to lobby your legislative representatives. Click the player below to listen or use the link above to download the show in mp3 format. Also linked below is the information sheet that Mr. Eichenauer handed out during the seminar.
Download Information Sheet (PDF)
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Fighting Back Podcast
Fighting Back Podcast provides information for and inspirational stories about people and families fighting serious or incurable diseases. It's produced for FighterMom and Fight SMA. What is a podcast? It's a web-based audio series (think radio). You can listen online, or download episodes to your computer or mp3 player. Listen to one of latest episodes by clicking the "play" button on the Flash-based mp3 player below.
To hear older episodes or to subscribe on iTunes or other services, use the Fighting Back Podcast Feed. You can also read Fighting Back episode notes and listen to shows on the FighterMom Blog. If you have an inspirational story that you think Fighting Back Podcast should tell, please contact us.
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Audio Advice
Below are individual "soundbites" from FighterMoms as well as experts. Some of these clips were pulled from episodes of Fighting Back Podcast.
The below clip is Dr. Chris Lorson, disease researcher at University of Missouri in Columbia and Fight SMA Science Director, talking about how parents can help disease researchers. He's being interviewed by Fighting Back Podcast Host Steve Mullen.
Download this audio clip in mp3 format
This clip is Dr. Alex MacKenzie, Director of the Research Institute at Children's Hospital in Ontario, who is also talking about the relationship between researchers and parents of children affected by diseases. This interview is also being conducted by Fighting Back Podcast Host Steve Mullen.
Download this audio clip in mp3 format
Audrey Gordon is the President and Executive Director of the Progeria Research Foundation. In the below clip, she says she wishes the FighterMom program had been around when she founded PRF.
Download this audio clip in mp3 format